All of that work has paid off. House Resolution 493, the Genetic Information Nondiscrimination Act (GINA) passed 420-3. GINA's highlights (from the Thomas Registry) include:
- a prohibition against discrimination by group health plans, health insurance, and Medicare issuers on the basis of genetic information,
- extending medical privacy and confidentiality rules to the disclosure of genetic information,
- making it illegal for an employer, employment agency, labor organization, or training program to discriminate against an individual or deprive such individual of employment opportunities because of genetic information, and
- penalties for doing any of these things.
If it makes it to the Senate's legislative calender, GINA should easily pass. Bush even has said he will sign it into law. If you have opinions on this matter, call or email your senator and refer to S.358.